Quote:
Originally Posted by toobig
Well here is my story. I have been diagnosed since age 12 with hypothyroidism, I have been big my wholle life except for 3 years in High school when I lost weight thru weight watchers. My cycles have always been extremely irregular and I was always told it was because of my thyroid. That is until 5 years ago when a endroconoligst diagnosed me with PCOS and put me on Metformin then Spironolactone. I never had a problem getting pregnant unless you think it being to easy is an issue and I do not have excessive hair growth on my face etc. I never have had cyst on my ovaries either. I had a hard time agreeing with this doc because I never had heard of this before, she insited Thyroid problems don't mess with your cycle. I feel she was looking for a diognosis to throw at yet another over weight patient. I took the Metformin, went to weight watcher joined a gym worked my butt off and only lost 30 pound in 2 years. The spirinolactone had me leeding all the time (at least that is what my gynocoligist came up with after various test to see why I started spotting two weeks a month in addition tomy period) So seeing that I had no extra hair growth I stopped taking the Spiro. I continuied with the Metformin though, now fast forward to two years ago my weight lose stopped I felt sick all the time nauseas, sudden bouts of diarrea and my thyroid level keeps changing but not for the better. I never feel hungry and only eat for routine, for instance I have to cook for my family so I eat with them even though I don't feel hungry at all, I usually jsut eat 1 meal a day. Now forward to this year, in October I was rushed to the Er for sevre pain in my lower right abdomine, I was tested over and over while tere and once the Doc heard I was Diagnosed with PCOS he said "well you ruptured a cyst" even though I told them I had no cyst. Two days after I started bleeding irregulary again and went to the GYN figuring that if a cyst had ruptured this might be an issue. Well he looked me and the records from the hospital over and said there is no way I ruptured a cyst and if they had looked at there results in the hospital then the Docs at the hospital they would have seen that diagnosis was wrong. His answer it was a virus. QUACK!!! It was the worse pain I ever had and I have had three c-sections. I was very angry about this and went to my regular doc explained the whole thing and what does he say it wasn't a cyst but a folical that burst the cause ? He says the Metformin is causing me to produce too many eggs and that this will happen again. My solution so I won't ever have this horrible experience again? Stop the Metformin. Meanwhile though I was seeing a nutritionist who said my Metabloism is all screwed up (DUH !!!) and I never feel hungry cause my body has gotten used to not eating and that I cant' lose weight because my body thinks it is starving, at the same time as all this though my thyroid meds have been increased up to 375 micrograms the highest I have ever had and the doc can't get the meds right. I am sick to death of being overweight but I feel no doc is on my side, I am just another fat lazy person that doesn't know any better with a minimal IQ according to them. I am sick of being put on all kinds of meds that give me awful side effects and don't help the weight loss but throw my system into all kinds of trouble. My doc wants to put me on a deit pill now but I have a fear of taking something that is gonna have me in the bathroom all the time. Does Anyone have any advise? Thanks
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Hi toobig,
I have PCOS as well. I was diagnosed when I was 18 and I went on metformin. It did make me sick when I first started taking it but I found that if you eat food with it, it will help and sickness goes away over time. I take 2,550 mg (850mg 3x day) a day of metformin and I used to be heavier than this but with exercise and eating healthy I lost 30 pounds.
I read your post and wanted to respond. First, do not despair. You are not fat and lazy with a minmal IQ. You are reaching out for support and trying to better your situation. There
is hope. Have you read jacys post about PCOS earlier in this thread? I would like to highly recommend that post for it is extremely informative. I think that you should see a new endocrinologist for your hypothyrodism and PCOS. I see one in Syracuse as well and a holistic doc and am very happy with them. If I may ask, which docs are you seeing now for your PCOS and thyroid? I have been to many and could perhaps help with a recommendation for Syracuse, NY if you would like.
I don't think that you should stop your metformin, but perhaps talk to someone that specializes in PCOS about lowering the dose so you won't be in pain. I know I am not a doctor. However, it is very important to eat enough so that your metabolism does not get messed up. Maybe that's why your thyroid and metabolism are having problems. All these are connected. I would recommend researching PCOS (google it) and find out as much as you can about hypothyrodism through research as well. I also know from my doc that your that your thyroid has a huge part in how your body manages weight. However, it is essential to eat properly and to eat enough calories spread out during the day. I think you should ask your nutritionist about that. May I ask, are you still exercising? That helps metabolism as well and would of course help with weight loss. I think it is important to find an exercise that we each like and make sure to do it regularly. I like yoga and running and dancing.
I looked up PCOS on a medical website and it said that a symptom of PCOS could be mild to severe lower pelvic pain.
I think that you should find a doctor that, again, specializes in endocrinology/PCOS and go from there. You might consider starting fresh with just one medical doctor that supports you and do your research and also as jacy said a naturopath to help you holistically in conjunction with the metformin. Then you would not have to worry about taking the wrong meds or too many meds or bad side effects from them, for there would be fewer meds to deal with if you let no one but a really good endocrinologist and holistic doc treat you. I think sometimes we have to look at things holistically AND medically.
Remember, there is hope. You will be ok. I have been there and felt out of control and not known what doc was right and why what med was doing which effect. (No offense) But I think we need to take control of our destiny and educate ourselves through a LOT of research and not be afraid to ask for second opinions. I kept looking until I found a good PCOS doc to treat me and additionally found another holistic one to learn more about my body and why all this was happening. Feel free to post feedback or PM me and we can chat.
God Bless,
RChopkoj